It's easy to get down from time to time about your vestibular migraines. But it's important to remind ourselves why we love this condition so much. Here are the top seven reasons to marvel in your migraine.Add a comment
Having a health condition that diminishes your ability to lead a normal life is hard. Having such a condition that's effectively invisible to the people around you can present particular challenges.
Since September of 2016, I've felt dizzy and light-headed every second of every day. It's a slightly delirious feeling, a bit like that dazed feeling you get in the first few seconds after you've awoken from a long sleep. In my case, that sensation lasts for the whole day. It doesn't immobilise me, and for the most part it isn't painful, but it's a constant distraction, and something that makes concentrating on anything - work, a conversation, brushing my teeth - significantly harder. And exhausting! As a result, I've changed my life. I work shorter days, I go out less, I avoid noisy environments or crowds. I'm generally a less conscientious, far more boring version of my previous self.
But if you met me, and talked to me, you'd never know.Add a comment
Navigating the intricacies of the medical establishment and the tricky doctor-patient dynamic can be complicated and confusing. Adding this to the anxiety caused by feeling unwell, and it can often seem daunting. Some people get discouraged by encounters with GPs and specialists, and don't feel in control of decisions regarding their health. Here are a few steps you can take to redeem control over your health and help the medical profession to help you.Add a comment
The following is a fictional account of how the MalaDIO tools could be used to research a particular health complaint, and improve the lives of sufferersAdd a comment
Millions of people around the world are living with ongoing health problems without a definitive diagnosis or effective treatment. When the medical profession has drawn a blank on your symptoms, it can be very distressing. But there are things that can be done to find solutions and improve your life.
Here are 7 things you can do to treat your undiagnosed conditionAdd a comment
The approach and discourse of support groups is well-intentioned, but poorly directed.
It makes sense for people all suffering from the same medical conditions, or experiencing the same unexplained symptoms, to band together. Facebook groups and forums are an excellent place to be reminded that you're not alone, no matter how isolating your condition. Receiving words of support from others brings genuine comfort.
But in terms of practical advice about actions to take to improve one's condition, these sites score poorly. Despite the immense collective experience and knowledge within the members of these groups, the way that this knowledge is distributed is haphazard.Add a comment
One of the insights that's been echoed by a range of medical professionals I've consulted about my condition is that vertigo, dizziness, is a difficult thing not only to diagnose, but merely to describe. People suffering from dizziness have different ways of explaining it. Getting someone else to understand the sensations I'm experiencing is very difficult. There are several parts to it.Add a comment
I started MalaDIO out of desperation to find answers about my own condition, and to improve my quality of life. Despite medical consultation, a battery of tests, and my own attempts to make modifications to my lifestyle, the condition is unexplained. It's brought me to points of desperation and contemplation of suicide on a couple of occasions. A life where my condition continues forever seems like a miserable option.Add a comment
People have never been provided with such a wealth of information related to medical conditions and symptoms. This information comes in two main categories: traditional medical research and patient-reported stories.Add a comment