Vestibular Migraine Results Filter (Beta)

The results of the initial survey can be searched by filtering the results by response. You can can exclude the results of certain respondents by unticking certain responses to questions. In the form below, click 'Generate stats' to see the overall results from the survey, then begin to uncheck responses to the questions and re-click 'Generate stats' to exclude people who responded that way from the statistics.



Gender

Male
Female
Prefer not to say

Age group

1970-1979
1960-1969
1980-1989
1940-1949
1990-1999
1950-1959
Prefer not to say

Ethnicity

Caucasian
Latino/Hispanic
Prefer not to say
African
South Asian
Mixed
Middle Eastern
East Asian

Country of residence

United Kingdom
United States
Canada
Argentina
Italy
Australia
Serbia
Nigeria
Nepal
France
Germany
Philippines
Denmark
America
Belgium
South Africa
Netherlands
Ireland
India
New Zealand
Uruguay

Do you have a clinical diagnosis of VM from a doctor?

No
Yes
Prefer not to say

Does your family have a history of any of the following conditions?

Vestibular migraines
No known history
Some history (Extended family)
Strong history (Immediate family)
Migraines (Other)
Some history (Extended family)
Strong history (Immediate family)
No known history
Vestibular problems (Other)
Some history (Extended family)
No known history
Strong history (Immediate family)
Allergies
Some history (Extended family)
No known history
Strong history (Immediate family)

How long have you been experiencing symptoms that you attribute to vestibular migraines?

1- 3 years
7-10 years
Less than a year
More than 21 years
4-6 years
11-20 years

Over that time, have the nature of symptoms changed?

My symptoms remain the same
My symptoms have changed in nature
I am symptom-free or near symptom-free

How has the severity of your symptoms changed?

Severity unchanged
Symptoms have got better
Symptoms have got worse
Now symptom-free

Please indicate the symptoms you suffer from or have suffered from while you've had VM

Non-migraine headaches
Occasional mild symptoms
Frequent mild symptoms
Occasional strong symptoms
Frequent strong symptoms
Not experienced
Migraine headaches
Frequent mild symptoms
Occasional strong symptoms
Not experienced
Frequent strong symptoms
Occasional mild symptoms
Spinning dizziness
Not experienced
Occasional mild symptoms
Occasional strong symptoms
Frequent mild symptoms
Frequent strong symptoms
Rocking sensation
Frequent mild symptoms
Occasional mild symptoms
Occasional strong symptoms
Not experienced
Frequent strong symptoms
Ear fulness
Frequent mild symptoms
Occasional mild symptoms
Frequent strong symptoms
Not experienced
Occasional strong symptoms
Tinnitus (Ringing in ears)
Frequent mild symptoms
Occasional mild symptoms
Frequent strong symptoms
Not experienced
Occasional strong symptoms
Blurred vision
Occasional mild symptoms
Frequent strong symptoms
Not experienced
Frequent mild symptoms
Occasional strong symptoms
Nausea
Not experienced
Occasional mild symptoms
Occasional strong symptoms
Frequent mild symptoms
Frequent strong symptoms
Brain fog
Frequent mild symptoms
Frequent strong symptoms
Occasional strong symptoms
Occasional mild symptoms
Not experienced
Sensitivity to light
Not experienced
Frequent strong symptoms
Occasional strong symptoms
Occasional mild symptoms
Frequent mild symptoms
Sensitivity to odours
Not experienced
Frequent strong symptoms
Occasional mild symptoms
Occasional strong symptoms
Frequent mild symptoms
Sensitivity to noise
Not experienced
Frequent strong symptoms
Occasional strong symptoms
Frequent mild symptoms
Occasional mild symptoms
Aura
Occasional mild symptoms
Occasional strong symptoms
Not experienced
Frequent mild symptoms
Frequent strong symptoms

What pattern description most closely matches your condition?

My symptoms are constant from one day to the next and not affected by external factors
My symptoms vary day-to-day, but can be amplified by known triggers
My symptoms vary considerably day-by-day, but without any apparent triggers
My symptoms are almost completely attributable to known triggers

Please indicate any of these that closely preceded the initial onset of your symptoms

A physical trauma to the head (eg vehicle or sporting accident)
No
Yes
A period of high stress or anxiety
No
Yes
A bout of cold or influenza
No
Yes
Stomach discomfort or food poisoning
No
Yes
Hay-fever or allergies
No
Yes
A course of antibiotics
No
Yes
Heavy use of illicit drugs
No
Yes
A loud concert or very noisy event
Yes
No
Taking a flight
No
Yes
An ear infection
No
Yes

Dietary tiggers: what foods have an impact on your condition?

Caffeine
Has no effect
Unknown / Not applicable
Strong negative effect
Mild negative effect
Positive effect
Cheese
Has no effect
Unknown / Not applicable
Strong negative effect
Mild negative effect
Positive effect
MSG
Strong negative effect
Has no effect
Unknown / Not applicable
Positive effect
Mild negative effect
Cured meats
Unknown / Not applicable
Has no effect
Strong negative effect
Mild negative effect
Positive effect
Fatty foods
Has no effect
Unknown / Not applicable
Mild negative effect
Strong negative effect
Positive effect
Artificial sweeteners
Unknown / Not applicable
Strong negative effect
Has no effect
Mild negative effect
Positive effect
Gluten
Unknown / Not applicable
Has no effect
Mild negative effect
Strong negative effect
Positive effect
Red wine
Has no effect
Strong negative effect
Unknown / Not applicable
Positive effect
Mild negative effect
Sodium / Salt
Has no effect
Positive effect
Unknown / Not applicable
Strong negative effect
Mild negative effect
Sugar
Has no effect
Unknown / Not applicable
Strong negative effect
Mild negative effect
Positive effect
Alcohol (other than red wine)
Strong negative effect
Unknown / Not applicable
Has no effect
Mild negative effect
Positive effect
Simple starches
Has no effect
Unknown / Not applicable
Mild negative effect
Positive effect
Strong negative effect

Do your symptoms get worse when you make certain movements (eg. bending, turning or tilting your head, lying down)

Not at all
Somewhat
Absolutely

Environmental or physiological triggers

Menstruation (women)
Unknown / Not applicable
Strong effect
Mild effect
Has no effect
Too much sleep
Mild effect
Unknown / Not applicable
Strong effect
Has no effect
Too little sleep
Mild effect
Unknown / Not applicable
Has no effect
Strong effect
Life stresses
Has no effect
Strong effect
Mild effect
Unknown / Not applicable
Strong or distinctive odours
Has no effect
Strong effect
Unknown / Not applicable
Mild effect
Taking a flight
Has no effect
Unknown / Not applicable
Strong effect
Mild effect
Travelling in/on a moving vehicle
Has no effect
Mild effect
Unknown / Not applicable
Strong effect
Sounds - repetitive, loud, staccato or sudden noises
Mild effect
Unknown / Not applicable
Has no effect
Strong effect
Lights - fluorescent lights, LEDs, bright light, dappled sunlight
Strong effect
Mild effect
Unknown / Not applicable
Has no effect
Visual - Noisy patterns
Strong effect
Unknown / Not applicable
Has no effect
Mild effect
Crowds
Strong effect
Unknown / Not applicable
Mild effect
Has no effect

Effectiveness of supplements

Magnesium
Tried possible positive effect
Tried- no effect
Not tried
Tried- definite positive effect
Tried- negative effect or interactions
5HTP
Tried possible positive effect
Not tried
Tried- no effect
Tried- negative effect or interactions
Omega 3 / Fish oils
Tried possible positive effect
Tried- no effect
Not tried
Tried- definite positive effect
Tried- negative effect or interactions
Ginger
Tried possible positive effect
Tried- no effect
Not tried
Tried- negative effect or interactions
Tried- definite positive effect
Gingko Biloba
Tried possible positive effect
Tried- no effect
Not tried
Tried- negative effect or interactions
Tried- definite positive effect
Vitamin B2
Not tried
Tried possible positive effect
Tried- negative effect or interactions
Tried- no effect
Tried- definite positive effect
CoQ10
Not tried
Tried- negative effect or interactions
Tried possible positive effect
Tried- no effect
Tried- definite positive effect
Butterbur
Not tried
Tried- no effect
Tried- negative effect or interactions
Tried possible positive effect
Tried- definite positive effect
Salt tablets
Tried possible positive effect
Not tried
Tried- negative effect or interactions
Tried- no effect
Tried- definite positive effect
Turmeric
Not tried
Tried possible positive effect
Tried- no effect
Tried- definite positive effect
Tried- negative effect or interactions
Feverfew
Tried- no effect
Tried- negative effect or interactions
Not tried
Tried possible positive effect
Peppermint Oil
Tried possible positive effect
Tried- no effect
Not tried
Tried- definite positive effect
Tried- negative effect or interactions
Potassium Gluconate
Not tried
Tried- no effect
Tried- negative effect or interactions
Tried possible positive effect
Tried- definite positive effect
Probiotics
Tried- no effect
Not tried
Tried- negative effect or interactions
Tried- definite positive effect
Tried possible positive effect
Alpha Lipoic Acid
Not tried
Tried- definite positive effect
Tried possible positive effect
Tried- no effect
Tried- negative effect or interactions

Please indicate the changes you've made and their effectiveness

Avoidance of trigger foods
Not attempted
Some help
Considerable help
No impact
Light exercise (eg. walking)
Some help
Considerable help
No impact
Not attempted
Botox injections
Not attempted
No impact
Some help
Vestibular therapy/exercises
Not attempted
No impact
Some help
Considerable help
Optical aides (glasses)
Not attempted
Considerable help
No impact
Some help
Ketogenic diet
Not attempted
Considerable help
Some help
No impact
Regular sleep patterns
Some help
Considerable help
Not attempted
No impact
Stress reduction
Some help
Not attempted
Considerable help
No impact
Hydration
Some help
Not attempted
Considerable help
No impact
Exercise
Some help
Not attempted
Considerable help
No impact

What medications have you tried, and what was their effect?

Amitryptiline (Tricyclic antidepressant)
Not tried
Tried- no effect
Tried- some positive effect
Tried- negative effect or interaction
Tried- strong positive effect
Nortriptyline (Tricyclic antidepressant)
Not tried
Tried- negative effect or interaction
Tried- some positive effect
Tried- strong positive effect
Tried- no effect
Other tricyclic antidepressant
Not tried
Tried- some positive effect
Tried- negative effect or interaction
Tried- no effect
An SSRI (Sertraline, Escitalopram, Paroxetine, Fluoxetine, Citalopram)
Not tried
Tried- some positive effect
Tried- no effect
Tried- negative effect or interaction
Tried- strong positive effect
An SNRI (Duloxetine, Venlafaxine, Desvenlafaxine)
Not tried
Tried- strong positive effect
Tried- negative effect or interaction
Tried- some positive effect
Tried- no effect
A GABA analog anti-convulsant (Gabapentin, Pregabalin)
Not tried
Tried- negative effect or interaction
Tried- some positive effect
Tried- no effect
Tried- strong positive effect
A benzo anti-convulsant (Diazepam, Lorazepam)
Not tried
Tried- strong positive effect
Tried- no effect
Tried- negative effect or interaction
Tried- some positive effect
A fructose-based anti-convulsant (Topimirate)
Not tried
Tried- negative effect or interaction
Tried- strong positive effect
Tried- no effect
Tried- some positive effect
A fatty acid anti-convulsant (Valproate)
Not tried
Tried- some positive effect
Tried- no effect
Tried- negative effect or interaction
Other anti-convulsant
Not tried
Tried- negative effect or interaction
Tried- some positive effect
Tried- no effect
A serotonin antagonist antihistamine (Pizotifen)
Not tried
Tried- negative effect or interaction
Tried- some positive effect
Tried- no effect
Tried- strong positive effect
Meclizine (An antihistamine)
Not tried
Tried- no effect
Tried- some positive effect
Tried- strong positive effect
Tried- negative effect or interaction
Other antihistamine
Not tried
Tried- some positive effect
Tried- no effect
Tried- strong positive effect
Tried- negative effect or interaction
A beta-blocker antihypertensive (Propanolol)
Not tried
Tried- no effect
Tried- some positive effect
Tried- negative effect or interaction
Tried- strong positive effect
A calcium channel blocker antihypertensive (Verapamil)
Not tried
Tried- no effect
Tried- negative effect or interaction
Tried- strong positive effect
Tried- some positive effect
Other antihypertensive
Not tried
Tried- no effect
Tried- strong positive effect
Tried- negative effect or interaction
Tried- some positive effect
A carbonic anhydrase inhibitor diuretic (Acetazolamide)
Not tried
Tried- no effect
Tried- strong positive effect
Tried- some positive effect
Tried- negative effect or interaction
An osmotic diuretic (Mannitol)
Not tried
Tried- no effect
A thiazide diuretic
Not tried
Tried- negative effect or interaction
Tried- no effect
Tried- some positive effect
Tried- strong positive effect
Other diuretic (eg. Loop diuretic)
Not tried
Tried- no effect
Tried- negative effect or interaction
Tried- some positive effect
Tried- strong positive effect
Betahistine (SERC)
Not tried
Tried- some positive effect
Tried- no effect
Tried- negative effect or interaction
Tried- strong positive effect
Prochlorperazine (An antipsychotic)
Not tried
Tried- strong positive effect
Tried- some positive effect
Tried- no effect
Tried- negative effect or interaction

Please indicate the medical specialists you've seen in relation to your condition and their value to your understanding of your condition and treatment

General practitioner (GP)
Seen- no value
Not seen
Seen- great value
Seen- some value
Ear Nose & Throat (ENT) Specialist
Seen- no value
Seen- some value
Not seen
Seen- great value
Neurologist
Not seen
Seen- some value
Seen- no value
Seen- great value
Neurotologist
Not seen
Seen- great value
Seen- some value
Seen- no value
Physiotherapist / Vestibular therapist
Not seen
Seen- no value
Seen- some value
Seen- great value
Optometrist
Not seen
Seen- no value
Seen- some value
Seen- great value
Audiologist
Not seen
Seen- no value
Seen- some value
Seen- great value
Behavioural/cognitive therapist
Not seen
Seen- great value
Seen- no value
Seen- some value

Apart from VM, please indicate other vestibular issues that have been proposed in your case

Acoustic Neuroma/Vestibular Schwannoma
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Age-related dizziness and imbalance
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Autoimmune Inner Ear Disease (AIED)
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Benign Paroxysmal Positional Vertigo (BPPV)
Not applicable
Concurrent diagnosis
Self-diagnosed/ suspected
Dismissed diagnosis
Bilateral Vestibular Hypofunction
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
CANVAS Syndrome
Not applicable
Dismissed diagnosis
Cervicogenic Dizziness
Not applicable
Concurrent diagnosis
Self-diagnosed/ suspected
Dismissed diagnosis
Cholesteatoma
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concussion
Not applicable
Dismissed diagnosis
Concurrent diagnosis
Self-diagnosed/ suspected
Enlarged Vestibular Aqueduct (EVA)
Not applicable
Dismissed diagnosis
Labyrinthitis and Vestibular Neuritis
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Mal de Débarquement
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Ménière’s Disease
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Neurotoxic Vestibulopathy
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Otosclerosis
Not applicable
Dismissed diagnosis
Concurrent diagnosis
Self-diagnosed/ suspected
Ototoxicity
Not applicable
Self-diagnosed/ suspected
Dismissed diagnosis
Concurrent diagnosis
Perilymph Fistula
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Persistent Postural-Perceptual Dizziness (formerly CSD)
Not applicable
Self-diagnosed/ suspected
Concurrent diagnosis
Dismissed diagnosis
Secondary Endolymphatic Hydrops (SEH)
Not applicable
Dismissed diagnosis
Concurrent diagnosis
Self-diagnosed/ suspected
Superior Canal Dehiscence (SCD)
Not applicable
Dismissed diagnosis
Self-diagnosed/ suspected
Concurrent diagnosis
Tinnitus
Not applicable
Dismissed diagnosis
Concurrent diagnosis
Self-diagnosed/ suspected
Vestibular Hyperacusis
Not applicable
Dismissed diagnosis
Concurrent diagnosis
Self-diagnosed/ suspected

Please indicate other non-vestibular conditions for which you have a diagnosis

Cluster headache
Not applicable
Self-diagnosed / suspected
Diagnosed - concurrent
Diagnosed - dismissed
Migraine with aura
Self-diagnosed / suspected
Diagnosed - concurrent
Not applicable
Diagnosed - dismissed
Tension headache
Diagnosed - concurrent
Not applicable
Self-diagnosed / suspected
Diagnosed - dismissed
Trigeminal Autonomic Cephalalgia (TAC)
Not applicable
Self-diagnosed / suspected
Diagnosed - dismissed
A metabolic disorder
Diagnosed - concurrent
Not applicable
Self-diagnosed / suspected
Diagnosed - dismissed
A hormone disorder
Diagnosed - concurrent
Not applicable
Self-diagnosed / suspected
Diagnosed - dismissed
A stomach / digestive disorder
Diagnosed - concurrent
Not applicable
Self-diagnosed / suspected
Diagnosed - dismissed

Exclude results where respondents have not tried a medication, supplement, lifestyle change or specialist, or where triggers are unknown


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